Tag: mom

The ‘Right’ Thing

This photo came up as a memory on Facebook a couple of days ago. It was bittersweet to see it. I remember that day clearly. It was only a year ago. Gary and I were in Florida for our annual pilgrimage to see the Mets during spring training. We took a short drive from our hotel to take a walk by the beach.  Gary did his thing – he likes to show he can still climb a tree – and I snapped the photo to document it and sent it to our children, who, in turn, would hopefully show our granddaughters.

At the same time that we were enjoying this ordinary moment of levity, I was struggling with a difficult and painful decision. My mother, whose health had been failing, took a dramatic turn for the worse the night before. We had only just arrived in Florida. Though Mom had not been doing well, I had spoken with my brothers, the hospice nurse and her aide before leaving and we thought she was stable. We were wrong. Thus the question: Should I return and go to New Jersey, or should I stay?

Gary and I contemplated that as we walked along the beach. I had several conversations with my brothers before our walk. Both of them encouraged me to stay in Florida. Mark was heading down to Jersey from Albany with his wife, Pam, so he would be there. Steven and his wife, Cindy, lived 15 minutes away from Mom so he visited regularly. Steven was quite insistent that I stay in Florida; they would handle things. I had been very involved with Mom’s care up to that point, they didn’t want me to cut short our brief vacation. We were scheduled to be away for a total of five days, and we were on our second day when things went south.

After much contemplation, we decided to stay, believing that there wasn’t much I could add. My brothers are capable people. Mom was sleeping most of the time. Despite that, I was still torn. Did I need to see her? I decided I didn’t. I remembered how painful it was to see my father during his last days. Those images stayed with me for years, crowding out memories of him as a healthy person. It was also possible that I would get back in time to see her since our trip was so brief. Though I was deeply conflicted, I didn’t have a strong gut feeling, so we decided to stay in Florida.

I was able to enjoy the sunshine and warm air. I had the welcome distraction of the baseball games and dinners with friends. We visited Gary’s mother. In between, I talked to my brothers and thought about Mom and continued wondering whether I was doing the right thing. My brothers and sisters-in-law were handling some rough stuff – administering morphine, watching Mom to see if she was uncomfortable while she mostly slept. I felt guilty leaving this final stage to them, but I was also relieved.

Gary and I flew back north on Monday. Mom was still hanging in there. Before we left for the airport, I called my sister-in-law Pam’s cell phone, knowing she was sitting with Mom. Pam told me Mom’s eyes were closed, and she seemed comfortable. I asked her to hold the phone next to Mom’s ear. I told Mom I was coming to see her the next day but if she was ready to go, it was okay. I told her I loved her, that she was a great mother and that she earned her rest.

We arrived back in Albany late on Monday. Mom was still breathing. I got up early Tuesday morning and was packing my things to drive down to New Jersey when my phone rang. Mom’s aide, Ama, said she believed Mom had passed. She was waiting for the nurse to come to confirm it. I was surprised and I wasn’t. I thanked Ama for all she had done for Mom. I felt lost – now what should I do? After calling Gary, who was at work already, I wandered around my bedroom deciding if I still wanted to go down to New Jersey. For reasons that aren’t entirely clear to me, even now, I wanted to go. Maybe to see visual proof that Mom was gone, maybe to help Steve and Cindy with the details….

Ama was indeed correct. The next few days are a blur, planning the funeral, sorting through her things.

It was Mom’s time – I knew that. I wondered whether what I said to her on the phone made a difference.  I didn’t exactly feel guilty about not being there, though I wondered if I would have offered her some additional comfort. I had been with Mom through most of her medical issues over the last years. I think I offered her comfort then. A year later I am still not sure how I feel. I am not riddled with regret, and I have been spared thinking of Mom as the sick version of herself. When I remember her, I think of her vibrant self. I am grateful for that. I still think of calling her to share good news.

I am also grateful to my brothers for protecting me – I think that is what they were doing by encouraging me to stay in Florida. I believe that they thought I had pulled my weight in caring for Mom, and they stepped up to see her through to the end, painful as it must have been.

Aside from knowing that it was Mom’s time, I know one other thing: there is no “right” answer as to how to handle the end of life. There is only doing the best you can and making decisions with love and compassion. After that, if you are a believer, you give it up to God. If you aren’t, and I am not, you give it up to the great unknown.

Note: Mom passed one year ago today – February 27, 2024. We miss her but take comfort in the long, happy life she had.

Silverware and Memories

I don’t know why but I think of Mom’s silverware as I stare out the window over my sink. My stomach clenches. I feel an ache; a sense of loss.

A week or so ago Mark and I brought some things, jewelry and said silverware (which upon closer inspection was silver-plated) to a place where they bought and sold gold and silver. No one in the family wanted these items – we had offered it far and wide with no takers. So, we decided we would see what we could get for them. All told the silverware came to $6.51. The woman who took it explained that they would melt it down and extract what was valuable, which wasn’t much, or we could take it back and try to sell it ourselves.

We could have cleaned it up, it was badly tarnished, and sold it on eBay or in a garage sale and perhaps gotten more, but that was more effort and time than either of us were willing to give. We decided to take the money. I think it was the right decision.

I realize I am not actually sad about the silverware; I understand why we did what we did and that if I kept it, I would not be happier. It is the loss of my mother, who valued that set, who took it as she moved from place to place, that I grieve. My mother liked pretty things. She set a lovely table. She used her ‘fine’ china – I’m not sure how fine it was – and silver when she entertained. When she served tea, she chose from one of many beautiful pots and cups she collected over the years. It gave her pleasure. I don’t tend to do that. I try to present food nicely when we have guests, but I don’t put the same effort into it, and I don’t enjoy it the way Mom did.

The silverware represents something else aside from Mom’s aesthetic sense. It was a reminder of family gatherings from long ago. Mom would have me set the Thanksgiving table – the table for the adults, we always had a kids table, too – with that silverware. I also helped when she and Dad hosted dinner parties, which they did often. They had a book club with friends that usually included Mom making dinner. I was her sous chef and assistant, vacuuming and raking our red shag living room carpet, straightening up and setting the table. My bedroom was just off the dining room. I would fall asleep still hearing their voices and laughter.

Despite the warm memories, I would not want to return to childhood. I was lonely and terribly sensitive. The societal upheaval of the late ‘60s and ‘70s weighed on me. I would not want to relive growing up with all of the insecurity it entailed, but I can get sentimental about certain things from that place and time. I thought my family was perfect. Though I didn’t appreciate that my brother Mark teased me mercilessly and my brother Steven had a scary temper, as did my dad, but it all felt comfortable and right. I knew they loved me and would protect me. I thought our extended family, my aunts and uncles and my mother’s aunts, uncles and cousins, were the best. They were part of my everyday life – coming in and out of my grandmother’s upstairs apartment regularly. I didn’t know there were tensions and complications in those relationships – not then, that awareness didn’t come until I was fully an adult. As a child my family life felt like a cocoon that shielded me from the pain of the outside world.

It has been many years since I emerged from that cocoon. The first peeling back of my comfortable nest was when Nana died, and I was 11. In some ways Mom carried on Nana’s traditions, but things changed. I left home at 16 to go to college and though I came back for some summers and a year of graduate school, I never lived with my parents again.  

Mom died one month ago. Her death is perhaps the final goodbye to that world.  Mom and my relationship evolved and in her final years. I was more her caretaker than she was mine, but she was still present. She was still Mom. I still wanted her blessing.

I am now part the oldest generation of the family. I am one of the elders. How strange! It’s also unnerving. I know I have matured, but I am still the same person inside. My spirit doesn’t feel old. Sometimes my body argues otherwise, but mostly it functions as it did, and I am grateful for that. But I can’t deny reality. I have one remaining uncle who I am so thankful to have, but that is all that is left of the older generation.

I suppose it is inevitable that seeing certain things, a favorite mug of Mom’s, a lovely piece of pottery that now resides in my cabinet, will remind me of her. Or a memory might be jogged when I set my table with my silverware for the seder, and I will grieve the loss again. Not just of my mother, but Dad, Nana and my aunts and uncles. Though the pang I feel in my heart is painful, it is a good thing, too. It tells me I have had rich relationships and there has been a lot of love given and received.

Eulogy for Mom

Note: I have written a great deal about my mom and posted some of her essays on this blog. She was an avid reader, supporter and contributor to this effort. After putting up a long fight for life, she passed away on Tuesday, February 27, 2024 in Freehold, New Jersey. Though we are broken hearted, we are relieved that she is no longer suffering. Here is the eulogy that I offered at her funeral service.

First, I must say thank  you, Mom. I was not the easiest child to parent, more specifically to mother. I was sensitive, self-conscious and insecure. I was not blessed with the innate optimism that Mom had. Mom had her work cut out for her – something I did not fully appreciate until I became a mother myself. I would like to share two stories of her successes.

I had a truly terrible teacher in 6th grade – and in those days in NYC you had one teacher for virtually all the subjects. It made for a long, unhappy day. My best friend and I decided we had had enough and planned to play hooky. And, we did. Her apartment was empty during the day and we had a fine time. Some kids might look for trouble – we baked cupcakes, had a food fight and watched TV. Her older sister came home early and found us. I was afraid my parents would find out so I fessed up to Mom when she got home from work. She didn’t get angry, she didn’t punish me. She told me if I ever got so distressed to the point that I needed a break, to tell her and she would let me stay home. I never did take her up on that – the idea that I could was enough of a comfort. I knew she trusted and supported me.

The other story was again in the midst of a trying time in August of 1975. I had cut short working at a summer camp because I was not comfortable with the drug use and partying that surrounded me there. My parents welcomed me home. Aside from that, my grandmother, my father’s mom, was seriously ill in the hospital. One night I couldn’t sleep, my heart racing, I woke Mom. She comforted me as best she could – reminding me of the positive things in our lives and she suggested that we plan a sweet sixteen for me. Mom always believed in making the best of bad times. I was nervous at the prospect of a party– would friends come? She planned one of the all-time great parties. It was a mystery bus ride – my friends tried to guess where we were going. We went to see The Fantasticks off Broadway in Greenwich Village, we had fried chicken dinners on the bus, and returned home to make our own sundaes. I had a sign in book where my friends and family wrote kind and loving messages – I still have that book – I still read that book. It was a revelation to me – a little like Sally Field when she cried, “you like me, you really like me!” when she won the Oscar. Mom, you did good.

Mom wasn’t perfect and she knew that – she could be very hard on herself. I think I knew her in a slightly different way than my brothers – maybe being her daughter she more readily shared other parts of herself, the less optimistic side. But one of her great messages was that we should always be learning and striving to be better. That we could improve ourselves. She believed that until her dying day. That may have been the greatest gift she gave me – the belief that we can grow and evolve if we are open to it, if we work at it.

I am so grateful to Mom. Many of you know I write a blog and I share stories on it that are sometimes painful and, in some cases, may have been difficult for Mom to read. But she only encouraged me. She read what I wrote. She loved it. She appreciated my honesty. Another gift.

So, Mom, you were a wonderful human being and you raised three good human beings – is there a better legacy? I think not. We will continue to pay it forward. We love you and will miss you terribly, but you have earned your rest. I hope your spirit is reunited with all those you loved so much. Rest in peace and love, Mom.

Mom on her 80th birthday

A Visit With Mom

I walked into Mom’s room and knew immediately that it was a good morning. Despite her pale color, Mom’s eyes were open and clear, and she smiled broadly at me. “Good morning, Linda!” she greeted me with enthusiasm from her bed. She knew it was morning, knew who I was and was happy to see me. That is not the reception I always get. Thankfully she reliably knows who I am, her daughter, but more often she can barely keep her eyes open, and her speech is slurred – a product of the various illnesses, including dementia, she is living with.

The unpredictability of her condition confuses me. I wish I understood it better. I try to emotionally prepare myself for whatever the visit will bring, but it is hard. The variability also makes it difficult to decide what to do about her care. Do we continue to aggressively preserve her life, or do we begin to let her go? I believe Mom’s life at this point is largely sustained by the medications she takes – a high dose of diuretic, as well as heart and blood pressure medications. On the visits that she is foggy and lethargic, spending most of her time sleeping, I wonder if we are doing her any favors. Although she will never fully be herself, on mornings when she is alert, when she is more connected and engaged, then all the medicine and effort make sense.

On this day Mom’s lucidity is a double-edged sword. We enjoy conversation about our family. She is entertained when I read a chapter from Mel Brooks’ autobiography. She listens avidly to his experiences during World War II, which bring back her own memories. But, on the flipside, she is painfully aware of her limitations. She ruefully tells me that she can’t buy the little things she likes to have for her grandchildren and great-grandchildren when they visit because she can no longer go out to shop. She shows deep frustration when she has difficulty getting up and walking to the bathroom. The effort leaves her breathless. It is a titanic struggle to get out of bed (despite having a hospital bed): to sit up, shift weight to her legs and shuffle the few steps to the toilet takes major exertion. And that is even with the assistance of her aide. Given that she is on a diuretic, the need to go is frequent. When Mom returns to bed she is clearly dismayed by her dependence on others and her inability to be in control of her bodily functions.

As the day wears on, Mom gets more confused. The energy and alertness of the morning give way to weariness and confusion. “Maybe they will send me home tomorrow,” she says to me. “Mom, you are home.” “I am?” She thinks she is in the hospital. She is in the same apartment she has been in for the last six years.

I point to the pictures that adorn the room. I show her the table that sits in the dining area just outside the doorway to her bedroom. She nods but then goes on to tell me about how when she was in the Air Force hospital in Texas after giving birth to Steven, they were in a barracks style room. They had to line up to use the bathroom and, “what did I do?” she asks me. “I don’t know.” “I fainted.” She goes on to tell me a convoluted story about them forcing her to get up, but then they put her to bed, and she heard her Aunt Bess in the hall loudly arguing that the nurse should take better care of her. “She made sure I had a silver pitcher, it wasn’t real silver, it was probably silver-colored but that’s not the point, with cold water. Aunt Bess was something.” She was rambling a bit, I thought maybe she was conflating several different experiences. It didn’t matter – I just listened. Then she said again that maybe she would get out of the hospital soon. This time I didn’t try to correct her.

I was getting ready to end my visit. We had talked about the weather forecast, which called for a snowstorm. I told Mom that I wanted to get on the road before the weather turned. She agreed and told me if the roads were bad not to come back to visit the next day. “It isn’t worth taking the chance.” “Thanks, Ma. I’ll stay safe.”

I had no intention of coming back the next day and earlier in the day she knew that. I was going to my apartment in the city to wait out the storm and then drive the rest of the way home to Albany. Mom knows that my house in Albany is a 3.5 hour drive away from her – well, usually she knows that. Depends on the moment.

I walked out to my car reflecting on the visit.

I know what I would want for myself. I firmly and passionately believe that I would not want to live the way Mom is living. I would prefer to stop the life-sustaining medications, take morphine or whatever would allow me to be comfortable while my heart and breathing ebbed, and say my goodbyes. Let nature take its course. Mom’s doctor has said that it is a legitimate, ethical decision – to stop Mom’s diuretic and other meds, make her comfortable and let her go. Though we have made the transition to hospice care, we have not discontinued those essential medications.

Mom is DNR and that decision was made with her full knowledge and consent – she was quite capable of understanding what it meant when we did the paperwork many months ago. I am her health care proxy, but we did not discuss this current scenario. I can’t in all honesty say I know what she would want. If I did it would make this much easier. I comfort myself with the thought that she does not appear to be in pain. Her activities are severely limited, her ability to engage in conversation is variable, her energy is negligible, everything is an effort…is she taking pleasure in her existence? Sometimes, but at best it is a small portion of the day. What is the right thing to do?

So I confer with my brothers and we decide to stay the course…for now.

There are only two things I know. I don’t want this for myself. And, there is no objectively right thing to do. No matter how much I rack my brain, or gut, clarity does not emerge. I need to make peace with the path we are taking and stop ruminating. One way or another, it will resolve itself in time.

In better days: Mom two years ago on the patio of her apartment

Note: I wrote this painful post because writing it helped me process my thoughts. Instead of having a jumble of emotions and images, I understand myself better. I share it because I imagine others may have gone through, are going through or will go through this journey. I think it is important that we talk about end of life choices. Perhaps it will spur conversation in your family.