Bittersweet

I know I have used the word bittersweet quite often on the blog. Lately it just seems to fit. This past week was no exception. It featured wide swings – from the deep satisfaction of connecting in person (!!!) with long-time friends (who were fully vaccinated) to extreme anxiety about Mom’s health and back to marveling at the wonder of a toddler. It has been a roller coaster ride.

I accompanied Mom for pre-op testing a week ago in New Jersey. It went smoothly, though, it is increasingly evident that any exertion takes a great deal out of her. I wish we had a better understanding of what is happening. I feel like there should be an answer – and with that some kind of fix so that her quality of life is improved. We continue to search but so far, we have not come up with anything. This has been going on since last August!

On Friday I brought her in for a procedure that was meant to enlighten us – at least with regard to the condition of her heart. In a strange way I hoped that the doctor would find something wrongthat he could address. He didn’t. Her heart is good – which should have been excellent news, and it does bring some comfort. The search continues for an explanation for her extreme fatigue and shortness of breath.

In between Monday’s testing and Friday’s procedure, I visited with family and friends who live in the New York City area. My son came into the city for the first time in over a year for work. He visited with me before his scheduled meeting. I gave him a bagel with cream cheese. He took a bite and exclaimed, “Jesus, that is so good!” He lives in Connecticut and gets bagels, but there are bagels and there are bagels. New York City may be struggling, but you can still get fabulous bagels on the Upper West Side.

Though things are far from normal, some activities are returning in new ways. A Vietnamese restaurant on Amsterdam Avenue set up some tables on the sidewalk enclosed in individual plastic bubbles. The pod was open on one side.  Steven, our friendship began when I was 14 or 47 short years ago, and I were enjoying our lunch when it started to drizzle, then the sky opened up. The waiter pulled down the plastic sheeting and zipped us in. We were protected from the elements and continued eating our delicious meal. When the rain stopped, the panel was unzipped and we emerged into breezy sunshine, a blue sky to the north but more ominous clouds moving in from the south. It was one of those fast-changing weather days. Spring is in full swing in NYC.

I consumed quite a bit of Asian food during my time in the city – all of it outstanding. Isn’t it great to share a meal with people you love? Another afternoon I met Aunt Clair at a Japanese restaurant. Despite her own serious health challenges, we were able to talk about family history and current events while digging into our bento boxes. I learned more about my Dad and clarified some things, some of which will likely make its way into a future blog post.

Late that afternoon I fought traffic on the Cross Bronx Expressway to meet another childhood friend – I know Deborah since I was four years old. Anyone who has lived in the New York area has to know the Cross Bronx is infamous – it can be 3 a.m. and traffic can be at a standstill. But Waze, the navigation app that scans for the best route, told me repeatedly, “You are still on the fastest route,” as I sat incredulously staring at the unmoving tractor trailer in front of me. The good news was that I was listening to NPR when the verdict was read in the Chauvin trial. What a relief – on so many levels! In addition to finally providing some accountability and a measure of justice, I hate to think what would have happened if a different verdict had been rendered.

I met Deborah for dinner in Port Washington on Long Island. Deborah lives in another part of the Island but suggested a spot that was more convenient for me to travel to. Another excellent Asian restaurant. I realized that I was only minutes from where my cousins grew up. After the meal, since the days are now so much longer, there was still some daylight. I plugged their old address into the GPS. It was only a five minute ride. The terrain was familiar and foreign at the same time. The lovely homes, tree-lined, curving streets and lush lawns were as I remembered. The house itself was quite different. The wood rail fence and bushes that lined the property were gone. The siding was a different color. But it brought back many memories of our visits. So much has changed. My aunt and uncle passed away – as have so many other family members. My cousins live in Massachusetts and Florida respectively. I took a picture and texted it to them. They commented on the changes they noticed. More evidence of the bittersweet nature of life.

Mom needed to be at the hospital at 6:30 a.m. on Friday. I drove out to New Jersey Thursday night and stayed with my brother and sister-in-law, they live about 15 minutes from Mom. Somehow when you know you are getting up at 5:00 a.m. it is impossible to get restful sleep. I woke up multiple times to check the clock, relieved to find that I still had more time. But at 4:30 I gave up. Mom was ready when I arrived at 6:00. We saw the sun rise as we drove east to the hospital.

The procedure took less time than expected and I was thankful that she had made it through it, even though I wished there was something they could have fixed that would improve her situation. Given that she is 87 and experiencing shortness of breath, I was acutely aware of the risks of the procedure. At least she had come through it.

She was admitted to the hospital because of a complication with her heart rhythm. I went to see her in her room. Her color was actually better than it had been. She was in good spirits. Assuming that she was stable, I planned to return home that afternoon. Months earlier the weekend of April 24th was chosen by our children to celebrate my husband’s birthday. Since Covid made going to a Met game an uncomfortable proposition, the kids came up with the idea of recreating the experience in our backyard. They would come to Albany and we would all watch the game together on Saturday afternoon.

Fortunately, Mom was stable, so after staying with her for a couple of hours, I drove home. The celebratory plans were a surprise to Gary. He didn’t know the kids were coming. I arrived home at 3:30 in the afternoon. Leah and Ben followed about 20 minutes later. Gary worked a bit later than usual, proving that he had no idea about the surprise. He saw Leah’s car in the driveway and was delighted. He came in all smiles. It only got better from there.

A couple of hours later, there was a knock at the door. Our almost 3 year old granddaughter stood smiling on the porch (don’t worry she wasn’t alone, her mother and father accompanied her). I reached out my arms and she lifted hers. I brought her into the family room where Gary was on the phone with a patient. His jaw dropped. I heard him say, “Okay, gotta go. Good night, Mr. Smith.” Fortunately, he had communicated the necessary medical information so though he ended the conversation abruptly, he was in fact done. He stood up and took her from me. So began the weekend.

Though we had a great time with the kids, my mom alternately sounded horrible on the phone (struggling to breathe and speak), then a bit better, then like herself, then horrible again. I was worried. I thought about whether I should go back down to the hospital, but what could I accomplish? The kids had gone to great effort. They set up a screen against the house so we could watch the Met game. They brought crackerjacks, peanuts, beer and sandwiches. They decorated with Met paraphernalia. The weather even cooperated, sadly, the Mets didn’t. They lost 7-1. We all agreed that was as it should be in a way, we’ve been to many losses at Shea and Citifield. Happily, we watched the game (indoors) the night before when Jacob DeGrom pitched a masterpiece.  

Our own version of the 7th inning stretch

Sunday morning, I blew bubbles with our granddaughter in our backyard. It delighted both of us. Something about watching the delicate orbs, rainbows shimmering on their surface, illuminated by the sun as they drifted into nothingness seemed appropriate. The fleeting nature of it, of everything, struck me. At the same time, her squeals of laughter as she chased them reminded me of the whimsy of life. I need to go with it, accept the bittersweet, as hard as that is.

Remembering Ray

by Barbara Spilken

Editor’s Note: Today’s post is written by my aunt, Barbara Spilken. It is about my grandmother, Nana. I have written many blog posts about her. Thank you, Barbara, for sharing your tribute to her. The photos come from the Spilken family collection.

I woke up in tears this morning. April 18, 2021 marks 50 years since my mother-in-law’s death. Not many people are fortunate enough to find inspiration to last that many years from anyone much less their mother-in-law. Most in-law relationships, if we are to believe Hollywood, are strained at best. I was blessed with a different reality.

Though I only knew Ray (Rachel Spilken) for three years before her untimely death, she shaped how I live my life and the values I strive to uphold. I was 18 years old when I first met her.

Ray was the sun to family and friends that orbited her. She welcomed people to her home, regardless of their station in life or if they had a disability or lived on the margins of society. My family of origin did not offer such a generous and loving atmosphere. I drank in this alternative and vowed to try to live her values.

Whether I have accomplished that is for others to say. I believe Ray’s legacy is going strong in our family. Her children, grandchildren and great-grandchildren are caring human beings, loving their families, involved in philanthropy, each trying to make the world a better place in their own way.

Everyday I wake up to see Ray’s large, beautiful mahogany dining room table in my house. It is a reminder to gather those we love, to share our burdens and our celebrations, to break bread as often as we can  –  to stay connected to each other.

I was welcomed by my husband, Terry, into his world. His mother extended to me every kindness and taught me these values. I hope I have done and continue to do them honor.

Terry and Ray in 1969

This year in which we have sustained many losses has inevitably led me to think about the meaning of life, I am comforted by my reflections on Ray. Her legacy of love and care continues to ripple through the generations that have followed. What more can one hope for?

At my wedding – January 10, 1971

Privacy

Privacy settings on Facebook

A snippet of conversation overheard:

“I can’t think of anything worse than finding a picture posted of me on the Internet without my permission,” he said.

“I don’t actually remember if he asked before he posted,” she replied. She didn’t sound perturbed by it. “He may have asked, I don’t remember…..I mean, I don’t like when someone does that either but….whatever.” She shrugged.

He shook his head disapprovingly.

The exchange got me ruminating about my own actions. I surmised that she was surprised to find a photo or video posted of herself online, and to him the idea of that happening, of personal stuff being out in the world that he didn’t put there, is an anathema. He wants his privacy. He doesn’t want anonymous people knowing or seeing his business.

Clearly, I don’t share that feeling. This blog offers plenty of evidence of that. I know better than to post a picture of a person without getting the okay beforehand, but I been known to make mistakes. Overhearing that conversation, I could imagine the young man saying to me, “You’re nuts for putting all that stuff out there!”

I know the exchange had nothing to do with me, but it hit a sore spot. I feel some measure of self-consciousness about what I do.

I don’t share everything. I draw boundaries.  I make choices about memories or experiences I want to write about. I also want to be careful that I am sharing my story, not someone else’s. Most of the time when I write something that involves another person in a significant way, especially if it can be seen negatively, I show it to them first. I have edited pieces in response and sometimes I censor myself. I have invited folks to share their perspective on the blog, too.

I want to share my experiences. It is a way of feeling less alone. When a reader responds that they identify with what I have shared, it is validating. And, even more importantly, writing about painful feelings, takes away of some of their power. Things that live in my mind as embarrassing or irritating are made less so when I put the feeling in words and set them free.

Why do I feel the need to justify that I do this? There must be a part of me that questions it, wonders if it reflects weakness or a failure to properly value my own privacy.

This question of privacy, though, goes well beyond social media etiquette. For instance, people make different choices in regard to sharing information about their health (I’m not referring to what is shared on Facebook, I mean even in everyday conversation). Some are an open book and might share more than you ever wanted to know. At the other extreme, some don’t want to be asked how they are feeling. As we get older, health becomes more and more of a focus. It can be hard to avoid discussing it. I think I fall somewhere in the middle. I want to be open with my husband and my children. If it is something that can be inherited, like high blood pressure or diabetes, then I think I owe it to them to share the information. If it is something that is affecting the quality of my life or my mood, it seems only fair to clue them in. I’m not big on putting on a happy face – at least not for those closest to me. I also tend to think secrets have a way of blowing up.

There shouldn’t be shame attached to illness either– it shouldn’t be seen as a sign of weakness or a personal failing. We’ve lived too long with people hiding mental illness or addictions, in particular. Some illnesses carry judgment – if you are a smoker and get lung cancer, or if you are obese and are diagnosed with Type II diabetes, you can feel like you deserve it and/or that others deem it as a just punishment. None of that is helpful. If it were simple, no one would smoke or be obese.

By the same token, I understand not wanting to feel like your condition is tattooed on your forehead. We don’t want to be defined by an illness. It is a matter of personal choice if you want these things widely known. There is no right way to be about this. We need to respect each other’s wishes. What makes it complicated is if we assume that others share our standards.

For me, the health issue is particularly vexing. My husband is a doctor. I have been with him from the beginning of his training and while I am not confused about the fact that I did not earn a medical degree, I think it is fair to say I have more knowledge than your average citizen. If someone speaks to Gary as a patient, he doesn’t share it with me. If it involves our children, he will. Our kids understand that (if they didn’t, now they do). I find, for whatever reason, some people do confide in me about these things; others don’t. It can be surprising who falls into each category.

I will admit to having pretty strong problem-solving skills. When my dad was sick, it made me feel better if I came up with something that helped him to be more comfortable. When Dad was getting chemo, he and Mom were staying in an extended-stay hotel. Dad was spending a lot of time in bed, aside from being tired, the chairs in the sitting area in their suite weren’t that comfortable. I found a place that rented furniture and we had a reclining chair delivered for the duration of his stay. It was a win-win. I still feel good about that. If Mom hadn’t shared her concern about Dad being in bed so much, I couldn’t have helped find a solution.

Combine the familiarity with medical issues with a propensity to want to fix things, or help people, and I can probably overstep. Or maybe I don’t. Geez, my brain is a confusing place to live.

I started this essay by recounting an overheard conversation that led me to question myself. Now, having written about it, processed my thoughts, and putting it on the blog, it isn’t eating at me anymore. I won’t go so far as to say I am at peace, but I am not ruminating. I’ll call that a victory.

The Cycle of Life

I just re-read last week’s blog post. This week’s could be quite similar. In this time of coronavirus, one day doesn’t vary much from another and that adds up to a sameness week to week. There were some differences. The prime one being I didn’t get to cuddle and play with my granddaughter. Oh well. I did get to babysit my great-nephew. He is almost 15 months old and fascinated by cars, trucks and buses. Fortunately, his house has a big picture window in the living room that looks out on a busy thoroughfare. We watched red cars and blue cars and yellow buses go by for quite some time.

One of the extraordinary things that is happening in our family is that a new generation is emerging. Aside from my granddaughter, I now have five great-nephews! The newest arrived less than two weeks ago, on March 24th. The oldest will be four in August. Four of them have the last name Brody. My father’s name carries on! So as not to be left out, the most recent arrival was given the first name Brody! When I was young Brody was not a first name (though I think both of my brothers were regularly called Brody by friends), now it is, and we are all delighted. It will be quite something when the five of them get together! Mass confusion might ensue, but what fun!

As we are at the beginning of a new season, a season of rebirth, I am acutely aware of the cycle of life. We are greeting new family members; we have said goodbye to others. No matter how long a life they have been granted, it doesn’t feel long enough. At the same time, we don’t want to see them suffer. There is a time to die. It is all so bittersweet. It is the way of the world.

Yesterday, the final day of Passover, is a day when Yizkor is recited. Yizkor translates as ‘may He (God) remember;’ it is a memorial service that is conducted four times throughout the year. In Judaism we commemorate the anniversary of a parent’s (and other immediate family members) death (the yahrzeit) by lighting a candle. We also participate in Yizkor and light a candle then too. Gary is not yet comfortable attending services in person, so he livestreamed from a New York City synagogue. Throughout the year we have done that and found it to be surprisingly meaningful.

Of course, our thoughts of David, and my father, and others who have died, are not limited to those occasions. I asked Gary yesterday what brings his dad to mind. The list was long – from mundane things like having a nice stretch of weather to elections in Israel – all things he would share on his daily phone call with him. We agreed that the most painful part of the loss is the finality of it. Many believe that we will be reunited with our loved ones when we ourselves die. I imagine that is a very comforting thought. I can’t say I have that faith. Instead, I comfort myself with memories that have become part of me, lessons that I was taught, the love that I was given and still carry with me. It isn’t the same as having their physical presence, but it is something – something significant. My father and my grandparents are part of my DNA and are, in turn, part of my children.

I marvel at our family’s the next generation. I will share the memories, the lessons and love and hope that they carry it forward.