Flight 5 EWR to FLL

Note: Gary’s Dad was hospitalized last Thursday morning with difficulty breathing. Gary flew down to Florida to be with him and oversee his care. He wrote this on the flight down and gave me permission to share it.

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It is a trip I have taken before.  It is filled with dread and anxiety.  It is filled with a sense of obligation and duty and a sense of purpose.  Once again, my father is at a crisis point.  He is hospitalized and in some significant danger.  Each time, it is a bit worse than the previous episode.  Each time, yet another illness has been added to the list of threats to his survival.

I travel there as his son.  I am not his doctor but yet I am.  Every major medical decision is really made by me at this point in time.  I know too much.  He has multiple diagnoses each of which carry a very limited life expectancy, starting with him being 95 years old.

Add to that lung cancer, kidney disease, about 7 decades of hypertension, atrial fibrillation that used to be paroxysmal (coming and going) but now is chronic, diabetes, a monoclonal protein that could at any time turn into myeloma or other blood cancer, nodules on his kidneys, a large nodule on his prostate.  And now congestive heart failure.

I guess you could say the most surprising thing is that he is still alive.  He is, if nothing else, a remarkably determined man.  He is still, all these years along the road, inspiring to me.  He is not the man he used to be.  Time and illness have taken away much of his incredible vigor.  He is physically and mentally slower than he was.  But he still finds a way to love life and even to enjoy it.

He is not like me.  I am probably better in math and science than he is, but in the most important ways he is stronger and more resilient than I could ever imagine being.  He enjoys people.  He tends not to be overly possessive.  He doesn’t like to wait; patience is not his strongpoint.  He is beyond courageous.  He will not let terrible things make him unhappy; his will is immeasurably immense.

He trusts me and I feel like he has always trusted me.  At least for as long as I can remember going back to my childhood when I got to drive his car in the parking lot when he went to check out the refrigerated warehouse that held the cold cuts he was responsible for distributing to supermarkets.  He trusted me to drive the forklift at too young an age.  Both of those experiences were thrilling for a youngster and I was not going to crash and betray his trust.

I will not betray that trust today either.

In a sense, the flight that I am on, this trip to Cleveland Clinic Florida hospital, is symbolic of the larger, sad journey we have been on for some time now.  He will die at the end of it.  If we do everything right, he will die.  There will be pain and loss and sorrow.  If we don’t do everything right, there will be guilt as well.  There will not be guilt.

This journey is one variation of the journey most children ultimately take with their parents.  It is the journey Linda took with her father.  It is the way things are supposed to go.  The children bury the parents.  That is what happens when it goes the right way.  And if you are very lucky, you get 95 years, perhaps even a bit more, of meaningful life.  Of life that is by and large happy.  Even when your parent, your hero is less than he was.  Even when the limits of life are more and more closing in on him, when his wife, your mother, is no longer the person she had been in almost every way.

It is really the best you can hope for.  It therefore ought to be good enough.  It doesn’t feel like it is.

I am grateful for so many things.  For the tremendous efforts my siblings have made to arrange essentially everything in my parents lives so that they could go on and live out what remains in dignity and with as much independence as possible.  I am grateful for Linda’s eternal support and wisdom.  And for the endless good wishes and support from my children and my lovely daughter in law.

I have friends who are kind and a work environment that is flexible and understanding.  Nobody says anything more than good luck when I have to cancel patients at the last minute to take one of these emergency trips down to Florida.

But, despite this, I am still filled with the same dread.

Postscript: David was released from the hospital late Saturday afternoon. His breathing greatly improved. Hopefully with an adjustment in his medication, he will be stable and able to continue to enjoy his time in Florida. If all goes according to plan, Gary and I will visit Paula and David to share Passover with them. We are keeping our fingers crossed that there are no medical crises between now and then (during or after, for that matter).

The Art (?) of Asking a Question

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Graphic from Signalvnoise.com

Class ended. Mercifully, after two and a half hours of policy analysis and evaluation, it was time for lunch. A group of six of us, all full time graduate students at Columbia, had a habit of going to the diner a couple of blocks down Amsterdam Avenue after class.

I gathered up my stuff and started walking with the others to the elevator when Dan nudged me to get my attention. Dan, who wore crisp oxford shirts and chinos to class and spoke with authority, asked “Why do you always apologize before you ask a question? I don’t get it.” I looked at him blankly, “Huh?”

He continued, “You always start your question, in class, by apologizing for it. Like, ‘Sorry, but I was wondering…’ Why do you do that?” There was more than a trace of annoyance in his tone.

I felt defensive. I thought for a moment, as we continued walking, trying to come up with an answer. Fortunately, the others in the group were chatting amongst themselves.

“Well,” I began, “I can’t say I consciously knew that I did that….” I was thinking quickly, reviewing what had happened in class that may have triggered Dan’s observation, trying to come up with some kind of reasonable response.

“There’s no reason for it, you shouldn’t do that.” he said, emphatically. “Sorry if it annoys you,” I responded, and I sped up to join the others. I probably annoyed him again by apologizing again.

This happened over 35 years ago. I thought about it then, and I still reflect on it now. Asking questions, in class or in conversation, isn’t that simple. At least not to me.

As I thought about it, many things came into play. First, was self-consciousness and insecurity. Maybe I HAD missed something the professor said. I knew some students, as a result of those doubts, didn’t ask questions. I had enough confidence to ask, but not enough to not preface it by hedging or softening it. I realized, as Dan pointed out, that I likely did start with something like, “Sorry, maybe I missed this, but can you explain….” I wondered whether there was anything so wrong with that.

I don’t think it occurred to me at the time, but it did years later, that it also probably related to being female. I knew that as a woman there was a line to walk, of not coming across too aggressively, but not fading into the woodwork, either. I had a hard time with that. I wanted to ask questions, I wanted to express opinions, but I wanted to be feminine, too. I think I felt that asking a question could be threatening and that was the last thing I wanted to communicate.

Other things probably played into it, too. When I was in college, Merle, my roommate, and I volunteered to work at the campus hotline, called High Hopes. It was a resource for students to call if they had questions. The question could range from the ordinary, like where to get birth control, to the very serious, like what to do about feeling depressed. We went through fairly extensive training – we weren’t supposed to be counselors providing therapy, but the hotline was a first line of getting someone help if they needed it. Some of the training involved attending lectures, getting information about drugs, sexuality and other common issues of concern to college students. We also learned about non-judgmental ways of listening to people and we did role plays.

We were trained, in a basic way, to use Carl Roger’s technique of reflection, which meant listening to the caller and repeating back what you heard them say. This method was intended to help the person clarify what they felt. Sometimes a person didn’t know exactly what they felt, so by reflecting back what you hear, he or she can evaluate whether it is accurate.

In addition, in reflecting, we were trying to refrain from judgment. Sometimes just asking a person ‘why’ can insinuate judgment. If we needed to ask the caller for more information, we weren’t supposed to ask, “Why do you feel hurt (or substitute any other emotion, angry, sad)?” It was better to say, “It sounds like you feel hurt. Can you tell me more?”

This made so much sense to me. I had a number of opportunities to use that approach on my shifts at High Hopes and, generally, it worked quite well. It turned out to be useful in parenting, too.

Leah was quite an emotional child. Supporting her through the roller coaster of adolescence was a parenting challenge. I was most effective when I remembered to use reflection (full disclosure: I didn’t always remember). It validated her feelings, helped her clarify them and often led to insights. I recommend it!

While that technique doesn’t exactly apply to asking questions in a classroom, which is what my classmate Dan was calling me out on, in one respect it does. As a result of my High Hopes experience, I became conscious of not implying judgment in a broader sense – I didn’t want a professor to think I was questioning their expertise, or suggesting they were a lousy teacher. It seemed like a reasonable strategy to start by acknowledging that I could be wrong or uninformed.

Before Dan’s comment, I hadn’t thought about it consciously, much less considered that there could be a downside to doing it. But I was learning that there was. If Dan was any example, it could be annoying. It also diminished whatever came after the apology, I was devaluing my own contribution. I didn’t want to go around apologizing for my existence. As I’ve gotten older, I think I’ve done it less.

This issue is relevant in another setting. As a school board member, and as a trainer of school board members, this aspect of communication comes up often. Frequently at board meetings a staff person makes a presentation and the board is given the opportunity to ask questions. This can be a minefield. A board member can, premeditatedly or thoughtlessly, embarrass the presenter by asking a pointed question. So much transpires in this communication. There can be history or baggage – is there goodwill as a baseline between the board and the staff? A particular presenter can be overly sensitive to questions. Some people are comfortable with public presentations and thinking on their feet and welcome engagement in the form of questions; others don’t. Even educators, who spend their day teaching, get nervous when speaking in front of the school board. We spend time at our workshops talking about modes of communication in order to raise awareness of potential pitfalls. I imagine this dynamic comes into play in many office settings. Who knew asking questions could be so fraught?

So, I’m still thinking about this issue. How do you ask a question?

1982: A Year of Change

 

 

Changes were afoot in 1982. It was a big year for the Brody family. Joshua, the first grandchild, born to my brother and sister-in-law, Mark and Pam, arrived February 1st. In April Uncle Terry and Aunt Barbara moved from the upstairs apartment in Canarsie to a large suburban house in Morganville, New Jersey. My parents had their first non-family tenants take their place. I began my job search, as I was in the last semester of my master’s program at Columbia. Gary was waiting to hear about medical school admissions, he was wait-listed at Pittsburgh and Downstate (in Brooklyn).  It was a time of excitement and anxiety.

In the midst of this, and maybe because of it, my parents started looking for a second home. I think my father thought that, since they would truly be empty nesters for the first time, my mom needed a distraction. Financially things were more comfortable than ever before. All three of us kids would be out of the house (two were married), they would have a market-rent-paying tenant, and their own salaries had crept up over the many years of teaching. They could afford to consider getting a country home. Their close friends, Cliff and Muriel, were in a similar position and together they went on weekend jaunts exploring places where they could consider buying.

Cliff was my Dad’s closest friend. He was principal of an elementary school in Brooklyn. Muriel was a home economics teacher.  As couples and individuals they shared many interests: travel, food, wine, books, and, for the men, tennis. Cliff and Muriel shared a unique quality: each had a very distinctive voice. Cliff’s was a gravelly bass rumble. Muriel spoke loud Brooklynese with a shrillness that could be hard on the ears. Fortunately, she was funny and interesting, her voice grew on you as you got to know her.

The two couples took weekend trips to the Catskills and the Poconos. They were looking for modest lakefront homes where they could escape from the stresses and strains of Brooklyn living and working. After checking out a number of areas, they came upon Edgewood Lakes Inn, a rustic hotel outside of Livingston Manor in the Catskills. Private homes were being developed on property adjacent to the hotel. Owners would have access to hotel amenities and to a lake. The two couples took the plunge and put down a deposit. Arrangements were made with a local builder.

Given that my parents were life-long Brooklynites, they entered this project with some trepidation. They had no history of being outdoorsy. I don’t recall them ever hiking or fishing or skiing. They had an appreciation for nature – but at a distance. When we drove through a national park, like Yellowstone, we pulled over at scenic overlooks. There were no hiking boots or backpacks involved. If we came across a mouse in our house, we all freaked out. My mother was afraid of all animals. Buying property in the woods, and building a house there, was a bold choice.

Those plans were proceeding while I moved toward graduation. I found a job with the Mayor’s Office of Operations in New York City. Gary continued working at a lab at Columbia Presbyterian, still waiting to hear about medical school.

At the end of June, I started my new job. I was assigned a cubicle in a row of interior cubicles. I was given a standard issue desk, chair and telephone. I called home and gave Mom my number so they could reach me if necessary (this was long before cell phones). I went through some orientation activities in the morning.  I was setting up my desk in the afternoon when the phone on my desk rang. I was quite surprised. I thought, who could possibly be calling? I was even more surprised when I heard Gary’s voice. I hadn’t even given him the number yet. He shared great news; he was accepted at the University of Pittsburgh School of Medicine! He was very excited and I was, too. But, it was also complicated.

Through my final semester in graduate school we wanted to coordinate our plans. We hoped the timing would work out, that I would know where he was going to be for medical school and I could search for a job there. But it didn’t play out that way.  Time was passing, I had to make a choice, so I took the job in the city. On my very first day of work, on June 21, 1982, we learned that Gary would be moving to Pittsburgh at the end of August.

That night Gary picked me up after work and we went to a bar in Sheepshead Bay for a celebratory drink. We sat at a table and raised a glass to toast his good fortune. Then, Gary asked me to marry him. Though Gary and I were planning our future together, we had not formalized it. There had been no proposal. For reasons I couldn’t really understand, Gary needed to know he was accepted to medical school before he would propose. It didn’t matter to me. I knew I wanted to be with him if he was a science teacher, lab tech or doctor. But, he didn’t see it that way. Now that he had the certainty of admission to Pitt, he popped the question. I said yes. He didn’t have a ring yet, he wanted me to shop with him so he would know what I liked.

We had decisions to make – and not just about the ring. I couldn’t see leaving the job I just started. We agreed that it was probably good for Gary to start medical school on his own so he could concentrate fully on his classes and get adjusted to the workload without worrying about me. Our preliminary plan was for me to stay at my job for a year, get married and then join him in Pittsburgh.

We shared all of this with our parents. Years later I learned from my father that they considered backing out of purchasing the house at Livingston Manor because of the looming cost of the wedding. They had not anticipated that we would be getting married that soon. After considering their options, they decided not to change course. Though it would be tight, they thought they could manage it.

The summer of ’82 passed. We planned the wedding. At the end of August, I accompanied Gary on the drive to Pittsburgh. His father rented a small van and we nervously drove it the length of the curvy, foggy Pennsylvania Turnpike. I helped get him settled, then I flew back home.

I came home to an empty house. In New York City the school year, my parent’s work year, didn’t start until after Labor Day which fell on September 6 that year. They were squeezing the last bit of pleasure out of the summer by spending the days leading up to Labor Day at Edgewood Lakes Inn.

My parents called me from there late one afternoon. That day, September 1, Cliff had a massive heart attack and died. As if that wasn’t bad enough, it happened while he was on the tennis court with my father. It was shocking. Cliff was 52, my Dad was 49. I was devastated for my father, actually for everyone. It was hard to take it all in.

Again, my parents faced a decision about going forward with the house. It was starting to feel like it wasn’t meant to be. While I wasn’t privy to all the details, they decided to move forward and Muriel did, too.

When I look back at 1982, it was such a roller coaster for my family. The birth of Josh. The traumatic death of Cliff.  Dad went for a thorough physical afterwards and found out that he had a bundle branch blockage, meaning that two of the three electrical pathways that regulated his heartbeat were blocked. He was told that eventually he might need a pacemaker. He also found out that his cholesterol was very high. Dad made a number of lifestyle changes as a result. It took him some time to get back on the tennis court, but he did.

Gary finished his first semester of medical school very successfully. We decided six months at my new job was enough, rather than a full year, and I moved to Pittsburgh in January of 1983, we got married in July. The house at Livingston Manor was built and was a happy home for my parents for over 20 years. They hiked, they went cross-country skiing, they hosted family and friends, they picked blueberries from the bushes in the woods nearby, they dealt with an invasion of bats. They mourned Cliff’s loss. Life went on in all its bittersweet glory.

A New Take on Book Clubs

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photo credit: Community Blog – dephoenix

Book clubs have a long history in my family. Growing up, I recall my parents, who were both teachers, periodically hosting their book club at our house. This involved cocktails, hors d’oeuvres and dinner. I would help my mother with the preparations and once the guests arrived, I said my hellos and retreated to my bedroom. Since my room was just off the dining room, I could hear the laughter and arguments that went very late into the night. All of the men and most of the women were teachers, as well. They enjoyed a spirited discussion.

Over the years I’ve participated in a number of book clubs, too, but none like the one I’m part of now. In 2014, my daughter Leah floated the idea of a family book club. She explained that Google had a free app, Hangouts, that would allow up to ten participants in a video conference call. Since we had family all over the country, she was living in Seattle at the time, it would be a good way to connect. I thought it was a brilliant idea. Leah sent out an email to her grandma, aunts, uncles and cousins – she cast a very wide net – to gauge interest. Since we do have family clustered in certain locations, we could have more than 10 participants if people gathered at one computer. Our family-video-book-club was born.

When we began my mother was living in Florida. She gamely tried to manage the technology – sometimes successfully, sometimes not. When she didn’t, I called her on the phone and I held it next to my computer speaker so she could hear and when she wanted to comment, held the phone to the microphone or I passed on her remarks. It wasn’t perfect, but it worked well enough. Now she is in New Jersey and more often than not my brother Steve is able to join her. So, we have my 84-year-old mother, her two granddaughters, two of her cousins, her three children, her nephew (occasionally another nephew joins us) and her daughter-in-law’s sister (got that?). We are a multi-generational group with very different ways of looking at the world. I found it amusing that, when we read Life by Keith Richards of the Rolling Stones, my mother was the most accepting of his excesses (and his excesses are well documented in his book – it is amazing that he is still alive). Most of us younger folks judged him more harshly.

We gather once every 6 weeks or so. People have moved around a bit over the years, currently we gather from Albany (NY), Freehold (NJ), Maynard (MA), Maclean (VA), Palo Alto (CA), Boston (MA) and Buffalo (NY). I have participated from various locations – all I need is a wi-fi connection and my I-pad. We have read 34 books together. Leah set up a rotation and each person gets a turn to choose the book. The ‘chooser’ moderates the discussion. We chat for an hour, usually on a Saturday morning.

It has been so enriching on many levels. First, I have to say, my family is pretty damn smart! I always learn from the conversation. My understanding of the book is always deepened, even when I haven’t particularly enjoyed the book. Actually, the conversation is most useful when I haven’t enjoyed the book because hearing what others, who did like it, have to say helps broaden my perspective.

Also, I have gotten to know everybody in a different way. I think, by virtue of being structured the way it is, we can only have one speaker at a time and we take turns, means that all voices are heard. That would never happen if we were physically all in the same room! So, those of us who are quieter in social settings, it is true most of us aren’t the shy, retiring type, we get to hear their thoughts. Plus, we actually talk about the book! Something about sitting at a computer screen at an appointed hour, with only our cups of coffee to distract us, and we don’t drift too far off topic. There are no side conversations.

The technology has failed us occasionally and that can be frustrating. Leah is persistent, though, and everybody is pretty patient while we sort that all out.

When we started, now almost four years ago (unbelievable!), I think everyone was nervous about choosing the book. No one wants to choose something that everybody hates. I was the first ‘chooser’ and I selected E.L. Doctorow’s Book of Daniel. I remembered loving that book as a young adult. He is a great American author with a long list of acclaimed novels (I have read many of them over the years). I didn’t recall how dense and demanding this particular book was. It is safe to say not everyone loved it (not even me on my second reading), but we had a great discussion. I think it may have broken the ice, in a way, since everyone was very kind. They didn’t throw me out of the club for picking something so difficult.

We have read in just about every genre – fiction, non-fiction, fantasy, sci-fi, historical novels, and autobiographies. We’ve read classics and current best sellers. I have read books I would never have chosen on my own.

While this book club is nothing like my parents’ more social, boisterous gathering, thank you Leah for organizing it and thank you to all who participate. I wouldn’t trade it for anything.