Category: Coping

“Why Am I Here?”

Yom Kippur, the Jewish day of atonement, is behind me. It was an intense day for many reasons – it usually is. Especially compared to an ordinary day. After all, if one observes, you fast and spend many hours in quiet reflection. A combination of things came together to make it especially emotional for me this year.

Though I have not written about it directly, I may have alluded to it in other blog posts, I have been facing a bit of a health challenge. Back in June, as part of a CAT scan to determine my calcium score, there was an incidental finding of a cyst in my abdomen. At first my doctor didn’t recommend follow-up, but on closer inspection of the scan, it was determined that it needed further investigation. Over the course of the summer, step by step, we tried to figure out what this thing was. There was a three-to-four-day period in early August where it was thought to be a pancreatic cyst that might not be innocent. During that stretch of uncertainty, I wondered if this was the beginning of the end. My aunt passed away from pancreatic cancer two years ago. I wondered if I was embarking on that journey.

Fortunately, another test result revealed that possibility to be extremely unlikely – they were able to take a fluid sample and the outcome was very encouraging. However, the question of where this cyst originated (it is large – about the size of a baseball, but not the shape of one) is still not clear and it makes a difference in terms of the course of treatment or whether just watching it is sufficient.

As I write this today, after much consideration, Gary and I, along with my doctors, have decided that we will get this thing removed, but it is not an emergency. Gary and I had planned a river cruise ten months ago that is scheduled to depart on October 15th. We have been assured that there is little to no risk in keeping our travel plan. It has been a confusing time and, with all of the back and forth, I am comfortable with our decision.

I am not going into all the details of this medical odyssey– no need to go into the nitty gritty of it. I am sharing it because it contributed to my state of mind going into the High Holy days this year. There had been uncertainty and a good deal of soul searching even before Yom Kippur began.

I am a Jew who is not religious; I am doubtful about the existence of God. Despite this I have taken the ritual of Yom Kippur to heart. Starting with Rosh Hashana, we are asked to reflect upon our behavior over the course of the prior year and admit to our flaws and failings. We ask for forgiveness from those we have injured or disappointed and we make promises to do better in the year ahead. For many, this process might involve asking God for forgiveness and beseeching him or her to allow us to be ‘sealed’ in the book of life for another year, but that isn’t what resonates with me. The practice of, on an annual basis, taking stock, holding yourself accountable and quite literally making amends is powerful – or it can be if taken seriously. It can also be an exercise in going through the motions. If I am honest, there were years that I have done that. Not this year.

Perhaps because of my heightened awareness of the precarious nature of health, I was more open to the message of the holiday. I listened to the sermon of the rabbi from B’nai Jeshrun, a synagogue in New York City that we live streamed, as we came to the close of Yom Kippur and I found his message very profound and more than a little unsettling.

Rabbi Rolando Matalon, who speaks eloquently with the Argentinian accent of the country of his birth, implored the congregants to ask themselves: ‘why am I here?’ ‘what is my particular mission?’ He offered a story from the bible of an unnamed person who asks Joseph, who is wandering in a field, what he is looking for and when Joseph replies that he is looking for his brothers, the man shares what he overheard the brothers say. This sets Joseph on a path to Egypt, a path he would not have otherwise taken, but we know how consequential that was. The rabbi offered a number of interpretations of this interaction, but ultimately the point he made was that every individual has an impact, whether they know it or not. In this bible story, a man only called ‘Ish’ (somebody) plays a critical role in setting events in motion. Rabbi Matalon continued by explaining that each individual is a messenger, each individual has to fulfill their particular mission – we have to do the work of figuring out what we are doing in this world. He noted that it was hard work that takes time and commitment. Whether I felt that the parable he shared was a perfect illustration of that idea or not, I believe his point is correct. That is the work of our time on earth: to discover what I can contribute to repairing the brokenness we see all around us and within ourselves.

In those days of deep uncertainty in August, when I wondered if I was facing a truly life-threatening illness, I asked myself that question. I realized I didn’t know how to answer and that was very troubling. As I listened to the rabbi, I visited the question again.

As a child and young adult, I thought about these things. I was always very introspective. I thought I would find a career that would lead me to fulfillment. I was growing up at a time when girls were encouraged to have careers, to consider alternatives to the traditional role of wife and mother. I believed that it wasn’t enough to be a homemaker. I wanted to make more of a contribution to the world. When I was in college, I remember conversations with friends, particularly with one friend whose mom was very devoted. We talked about how it was important to have a well-rounded life, to not be solely defined by being a mother. At that point, I didn’t even know if I wanted to have children, I didn’t imagine that I would ever define myself that way.

As I went to school, through college and graduate school, and through my first professional jobs, the question of what I was meant to do nagged at me. I had not figured it out. Sometimes I would really struggle – I would not go so far as to describe it as depression, but persistent sadness over my inability to find purpose. Imagine my surprise when I found that the questions stopped after I became a mother. I had no expectation that it would answer that very fundamental issue. While I still grappled with defining myself, a substantial part of me felt settled. I understood what I needed to do. In a day-to-day way my purpose was clear. I thought to myself, ‘I guess the joke is on me because mothering appears to be what I am meant to do.’

My children have been adults for a long time now. My relationship with them has evolved and continues to evolve. Since they left home about 15 years ago I worked at a job that provided some satisfaction. Then I retired to take up writing with very little success, if one defines success as mainstream publications or earning money or fame or large readership. I would not say the question of my purpose has plagued me as it did in my youth, but all is not quiet inside either. There I was all those years ago, smugly talking in my dorm room, about how I wouldn’t be like the women raised in the 1950s, and yet here I am struggling with finding meaning now that the years of active mothering are behind me. The irony is not lost on me. The role that felt the most fulfilling is essentially done – not that I don’t have a meaningful relationship with my children and grandchildren. But it doesn’t feel the same – my soul (whatever that is) is not as well nourished.

I think the rabbi’s question, and the intensity of all the emotion leading up to the moment, led to a bit of a crisis of meaning and confidence. In the week that has passed since then my innards have settled. I am finding comfort in reflecting on meaningful conversations, friendships and experiences.

All of this introspection is not only prompted by the High Holy days. It is also the season of my birthday. The lyrics of that Beatle song “When I’m 64” have come home to roost. That number kind of freaks me out even though I am still a year away from Medicare eligibility. Apropos the lyric of the song, I am confident that Gary still needs me. One of the thoughts that has given me solace over this past week is the idea that I have helped him to make a significant contribution to the quality of his patients’ lives – and that ain’t nothing.

I will leave you with one other important lesson learned from this Yom Kippur. In the spirit of the holy day, I hoped to ease the tension (make amends) in a relationship by calling and discussing the issue. It may be obvious to many that it wasn’t wise to have that kind of heartfelt conversation on a day of fasting – it wasn’t obvious to me. It is now. Perhaps I should have taken a clue from Jewish law which prohibits making phone calls on the holiday – something I have always ignored. It might have gone better in the days leading up to or days following Yom Kippur because the odds of success are greatly enhanced when all parties to the conversation are fed, hydrated and caffeinated. Sorting out fraught emotions while headachy, hungry and tired is not a winning strategy. Tensions have subsequently been eased but we may have arrived there with less agita if I had placed the call on any other day.

Live and learn – something I hope to continue to do every day that I inhabit this earthly realm. And, I believe that is also in keeping with the rabbi’s sermon.

Foggy morning on the Mass Turnpike

It Got Me….Finally

Hooray! I moved back into my bedroom this morning. My period of isolation is over! Ten days is a long time – at least in some contexts. After three years of avoiding it, Covid caught up with me.

I went to Boston to give my daughter a hand as she was dealing with a sick husband and child. We thought, based on the diagnosis at the hospital, that her daughter had croup, and that Ben was just under the weather. I figured I would mask while I was there, hoping to avoid getting whatever bug they had. What’s that saying? Something like, ‘woman plans, god laughs.’

I arrived at their apartment, said hello, and picked up a prescription that needed to be filled for the baby, and their insurance card. I went to a pharmacy and then got sandwiches for lunch. When I returned, I helped fold laundry. I removed my mask to eat lunch but sat distant from Leah. We opened a window to increase the airflow. Leah was relieved to have me there. So far so good.

About two hours into my visit, Leah’s phone rang. It was the Somerville Health Department telling her that someone in the household had tested positive for Covid. The baby had been to the hospital the night before. As part of the examination of the baby, they swabbed her for Covid. Given that she was diagnosed with croup, Leah and Ben hadn’t given it a thought. The news came as a shock.

Leah and Ben did a home test and, lo and behold, they were both positive. They called the pediatrician to share the information and find out if it changed anything in terms of the care of the baby. Turned out, it didn’t, which was a relief in some ways. We discussed what I should do.

I decided I would stay at a hotel for that night – I certainly wasn’t going to stay at the apartment. I told them I would bring them dinner and other supplies that evening. I left. Ben, who was feeling pretty miserable at this point (totally exhausted), was going to call his doctor to see if they recommended treatment.

I double masked everywhere I went. I decided I would go home the next morning. If I got sick, I didn’t want to be in a hotel in Boston and I didn’t want to feel too poorly to drive the three hours home. I stayed at the hotel that night after picking up Paxlovid for Ben and dinner for them. I felt fine.

I brought them breakfast in the morning. I was double-masked. Said my good-byes. I felt terrible leaving them, everyone sick. At this point, Leah was having symptoms, too. Great – a cranky baby and two parents who felt like shit. Plus the anxiety of not really knowing how serious Covid would be for the baby. But, what choice did I have?

I still felt fine as I drove home. I tested when I got home – negative. Maybe I would escape. I tested the next morning – still negative. But, now I’m starting to feel poorly. Headache, sore throat, tired.

Covid is a strange virus. It behaves differently in everybody. Plus, you can test negative and still have it. You can test positive and have no symptoms. You can continue to test positive long past the infectious stage. It so hard to know what to do. You hear horror stories about people having long-haul covid.

I went for a PCR test that morning (Saturday) and got a positive result within 24 hours. During the height of the pandemic, it could take 3 days or longer to get a result (which made the test almost useless) – so at least that is better. By the time I got the result, it was clear I was sick. My body hurt all over. I felt exhausted. I started coughing. I called my doctor. They recommended Paxlovid. I have several risk factors for serious illness, so though I am always a bit anxious about taking a new medication because it isn’t uncommon for me to have strange reactions to things (rash, anyone?), I decided it was worth it.

Meanwhile, it is now Sunday, the day I am supposed to read for the Brooklyn Nonfiction Prize. I didn’t want to miss it. I had a strategy. Though I was coughing, it wasn’t that bad (yet). I decided I would take cough medicine in advance. I had throat lozenges at the ready. I took Tylenol, too. I napped for an hour beforehand. The adrenaline kicked in. I was next to the last to read – of 15 people! I did not win. Nothing to be ashamed of – the other essays were good. I was still disappointed. I have to admit, I kind of crashed afterward. I was exhausted. It didn’t help that I was facing 7 more days of isolation.

I moved into Daniel’s old bedroom for the duration. I used what had been the kids’ bathroom. We are lucky to have so much room. Gary is serious about this isolation and masking stuff. He has masked at work from the beginning of pandemic and continues to do so now (he just recently stopped using goggles). We ate separately. We would watch t.v. in the same room, but distant and masked and, as long as it wasn’t too cold, we had a window open. It appears that he has not gotten it. When he had it last Fall, he still blames Las Vegas (we will likely never go back there!), I didn’t get it from him after we followed much the same isolation protocol.

I’m glad I took the Paxlovid. I did have a very unpleasant taste in my mouth for the five days I took it, and my digestive system did not enjoy it, but I recovered pretty quickly. The fever, severe headache and body aches were gone within 24 hours. The fatigue lasted a bit longer and the cough lingered. As of today, ten days into this, the cough is almost entirely gone. That is always the last symptom to go when I have a respiratory illness.

Though I was clearly recovering, I woke up each morning feeling sad. Another day isolated. I felt okay, but not so good that I had the energy to be productive. In theory, there are always things to do in the house – junk drawers to sort, stuff to organize. I didn’t feel up to it. Instead, I binge watched Top Chef. Thank god for that!

Fortunately, the baby, Leah and Ben have recovered well, too. I could hear them cheering all the way from Somerville when the baby could go back to daycare. Ten days cooped up in a relatively small apartment with an 11-month old who is healthy enough to be active, but fussier than usual, with no reinforcements, and little sleep, is an ordeal. They rose to the occasion, as they always do.

One piece of good news: we should all be immune for the next few months! Gary and I have a trip planned at the end of May. I should be able to travel without worrying about Covid. Leah and her family should be able to go out and about the rest of this Spring and early Summer without thinking about Covid, too. And we appear to have weathered the illness without lasting effect. It is always a matter of perspective – and finding the stuff for which to be grateful. It doesn’t come naturally to me to do that, but eventually I figure it out.

The view out my kitchen window. I looked at that a lot over the last ten days. I’m lucky to have such a lovely view

Have Things Changed?

Have things changed?

Do you find yourself asking friends or family that question? It has come up in a few different contexts. The other day I was visiting with a friend. She, like me, is involved in the care of her elderly mother who has faced a myriad of health issues. She was telling me about her mother’s frustration with her television set – sometimes it works, sometimes it doesn’t, sometimes she can get the channels she wants, sometimes she can’t. I know from experience with my mom it can be hard to sort out the source of the problem – is it the equipment? is it the technology? Which part of the technology? Is it our mother? I am not terrible when it comes to troubleshooting cable, the internet, and equipment, but I am no tech geek either. I can manage, but how is an 89-year-old or a 92-year-old supposed to navigate it? I have an idea! Senior living centers should have staff specifically devoted to tech support (separate from maintenance) – someone residents can call when their remote no longer changes the channel or their iPad freezes. It would save so many frustrating calls to family members who aren’t nearby or can’t just drop in and fix it. I imagine many people would be willing to pay something extra for the service.

In an effort to make things better, my friend went to Best Buy and bought a new t.v. and arranged for delivery. While I was visiting with her, the t.v. was supposed to be delivered and installed. Everything that could go wrong went wrong. There must have been six phone calls before it was finally determined that the person showing up to do the installation was not the same person who was delivering the set. The installation guy arrived before the t.v., and they had no record of the delivery being scheduled!

In between being beyond annoyed, we had to laugh. The whole thing was preposterous. My friend was sure she had been clear about the delivery address (at first the person on the phone was heading to her house, which is not where her mother lives). Nothing got accomplished – leaving my friend with another series of telephone calls to straighten it out.

Was it always so complicated? Were deliveries routinely screwed up? These days I am so relieved when anything goes as planned. But, maybe I’m just older and more impatient. Maybe I’m focusing on the errors and not all the times things happen the way they should.

I have raised the question before – does all the technology we use make our lives easier? Or, does it introduce more opportunities for things to get screwed up – and make it more difficult for us to get to the bottom of the problem to fix it.

I am responsible for overseeing my mother’s medical care. It makes sense that I play that role since my husband is a doctor and neither my brothers nor their spouses have that expertise. The one problem with this is that I live about 3.5 hours away from Mom. Generally speaking, I am able to work things out to accompany her to appointments. The thing that has been more challenging has been keeping her medicines and medical supplies in stock. I can’t tell you how many times there have been problems. Sometimes the issue is one of supply – the pharmacy to which the prescription was sent (electronically) is out of stock of the particular drug. Do they call me? No, apparently they communicate with the doctor (or maybe, depending on who you believe, they communicate with no one). I have explained to everyone and anyone involved in Mom’s care that they should call, email or text me – in fact in many cases my number is the only one they have. And, yet, I still don’t get notified.

And, when did supplies get to be an issue? I had a conversation with my daughter the other day while she was in search of eye drops, amoxicillin and children’s Tylenol for her baby who had conjunctivitis and an ear infection. She spent hours on the phone calling pharmacies. Finally, after a whole lot of back and forth with pharmacists and the doctor’s office, she called me triumphant. She scored the needed drugs!

Going back to my travails with keeping my mother’s supply of medications.: another issue is, not surprisingly, insurance coverage. I am told that her sensor (Mom has diabetes and finger sticks are just not practical anymore) is not covered by Medicare. Then when the drugstore receives the prescription for it, perhaps reasonably, doesn’t fill it (figuring the patient will likely want an alternative that is covered) and sends an email to the doctor letting her know. Eventually I get informed, and I tell them, just fill it. This happens every month. I believe that the sensor probably could be covered but I would need to appeal the decision and go through the hoops and loops. And they’d probably make me do it every time! I think they are counting on wearing me out – and they have been successful. I don’t want to go down that rabbit hole; I just pay for it. Fortunately, it isn’t crazy expensive.

There are so many layers to this. Sometimes I think systems are deliberately set up to not serve us. Or perhaps, as drugstores and doctors’ offices are bought up by corporate entities, the systems are designed, and the decisions are made too far away from where the service is delivered. Something is lost. When entities were smaller, they could be more responsive. Maybe that accounts for some of the loss in customer service.

Or maybe things aren’t actually that different. As I consider this, I wonder if I’m just an old fogey. People are people, after all. What do you think?

Self-Care: Filling Your Cup

Last week’s blog entry that I entitled Self-Care drew some interesting comments that got me thinking. Gary, my husband, who is also a doctor, pointed out that taking care of oneself was a good investment of time and energy. A number of the things that I identified as self-care were doctor recommendations. I can see his perspective. Rather than resenting the time it takes to do the physical therapy or whatever it is that has been prescribed, one could look at it positively. Time spent making yourself healthier, perhaps pain-free, or with improved mental health, is a good use of one’s time and better than a lot of alternatives. Once again, reframing something has its benefits.

I also received useful feedback from Leah, my daughter. She argued that activities I was including in self-care didn’t necessarily belong there. She suggested that self-care can be thought of as activities that ‘fill your cup;’ things that restore your spirit. I like that notion. While I didn’t specifically list brushing my teeth as part of my self-care routine, it was included as part of what I do to get ready in the morning. I don’t think that should really count as self-care, except in the broadest sense. It is necessary to preserve my dental health but doesn’t do much to restore my spirit. Although, replacing morning breath with minty-fresh breath is a big improvement – I think I’m getting too far into the weeds here. It is safe to say I am over-analyzing this.

Back to the main point: Even if I take a broader view of self-care than the one Leah offered, I like the exercise of thinking about what is restorative. It is helpful to be mindful of the activities that energize us because when we do have a bit of time to spare, we can make a good choice as to how to spend it. Sometimes I take the path of least resistance – turn on the television and vegetate. There is a role for that, occasionally. But, more often than not, spending time on the couch watching something mindless is enervating. I feel worse, not better, afterwards.

What does make me feel better or more full? First and foremost, spending time with my children and grandchildren. Sometimes that isn’t possible so making a plan, having something on the calendar, so that I know when I will see them is wonderful. It doesn’t have to be complicated – we don’t need to be doing anything special – actually the less hectic the day, the better. A couple of weeks ago, our son’s family visited, and we went to the playground, came back and hung out. Our granddaughter set up an obstacle course on the living room floor (it involved navigating a path through pretend lava – paper – and hopping over pretend rocks – crayons) and we took turns. She is four years old and she delighted in first showing us what to do, then telling us if we were successful. I loved it. What better way to spend time?

Another thing I find energizing is travel. While it is fabulous to take trips overseas or to cities or landmarks in the United States, again, it doesn’t have to be that elaborate. I’m happy to explore the hilltowns a few miles away, or take a ride in the Catskills. Anything new is interesting to me and if we can find some natural beauty, a lake, some mountain views, all the better. I am happy just to take in the scenery. Of course, I wouldn’t turn down a trip to Paris or the Canadian Rockies, but clearly those are rare. The trip we took last fall to the national parks in Utah and Santa Fe was sustaining. I look at the pictures every so often and it brings back the exhilaration of seeing those beautiful places. Being in nature is the best way to restore my equilibrium. When my dad was in the hospital in Florida, and he was terminally ill, I either went to sit by the ocean for a few minutes or walked in the bird sanctuary most days and just breathed. If I hadn’t done that, I don’t know how I would have coped.

Reading, particularly a good novel, makes the cut as self-care, too. Not all my reading experiences, though, fall into this category. I have read stories that annoyed me. Why I stayed with the book is a reasonable question, but sometimes even when the main character is exasperating, I still want to find out what happens. Also, if I am reading non-fiction, it can be challenging to find the right balance between what is stimulating to learn about and what is so disturbing that I have to close the book for a while before continuing. Reading anything about the Trump administration would not fill my cup! I guess reading can be a bit complicated.

I can’t leave this topic without also mentioning art museums – I love them! They can be small, like the Fenimore in Cooperstown or Albany’s own Museum of History and Art, or huge like the Metropolitan in NYC, I find looking at the art in relatively calm, quiet spaces to be relaxing and energizing at the same time. Add an outdoor sculpture garden and I am in my element. I don’t even have to love the art itself, though if I can find a few pieces that speak to me that’s all the better. Walking through rooms where the focus is on what people have created and taking it in, is delightful. I think some people may get hung up on thinking they are missing something if they don’t ‘get it.’ I try not to worry about that – I just like looking and generally will find something that is either just interesting or moving.

As I consider this, I realize that I don’t find spa treatments all that fulfilling. The idea of it is more appealing than the actual experience. I like the end result of a pedicure or manicure, but the process just doesn’t do it for me. On the rare occasion where I have gone with a friend or with Leah, I have enjoyed it much more, but otherwise I would rather take a nice walk.

What do you find restorative? Have you thought about it? We might be making certain assumptions about what fills our cup based on popular culture and it may not really work for us.  It would be great if readers would share.

From a local winter walk in the woods – Five Rivers
From a local walk in the woods this past Fall – Thacher Park

Self-Care

If I spent all my time taking care of myself, following all the doctors’ directions, therapists’ advice, self-help manuals, I wouldn’t have time to actually DO anything! And I am a retired person and my children are adults who are living on their own. If I had a full-time job and young children, it would be nearly impossible.

Since last May I have been dealing with chronic hoarseness. After a number of exams and scoping of my vocal cords, I was referred for speech therapy. Fortunately, that testing didn’t find any growths, but noted a combination of the effects of reflux and muscle compression. The speech therapist did a thorough evaluation and recommended vocal exercises. She also gave me papers with foods to avoid (two pages worth) and foods that are encouraged (a small list). I also received some stretches to focus on loosening the neck muscles. I am supposed to do the stretching and vocal exercises 3 to 5 times per day. The protocol takes about 5 to 7 minutes. So far, I have been managing to do it twice a day and feel pretty damn proud of myself.

Another part of the routine recommended by the ENT, to help with congestion, is to use a netti pot and saline spray. I do the nasal rinse once a day and the spray twice. These take another 5 minutes. I’m also supposed to use a humidifier. Setting that up and taking it apart each day is another 5 minutes.

All of the stuff to try and deal with these throat and ear difficulties add up to at about 45 minutes each day.

In theory, these are the other parts of my self-care routine:

  • Waking up – brush teeth, take daily pills, wash face, comb hair – 10 minutes
  • Make the bed – several advice gurus stress the importance of starting the day by making the bed – I subscribe to that idea – 3 minutes
  • Exercise (at least 20 minutes but I actually do 35 either walking outside or on the treadmill) – if it is vigorous enough, it requires showering after, so add another 20 minutes. I am quick in the shower, so 25 minutes allows for getting dressed, too. I also play tennis once or twice every other week, each time 90 minutes (add another hour for driving to and from the courts).
  • Meditation – 10 minutes
  • Shower or bath – if I haven’t exercised and showered, then I will do that and take more time with it – more like a half hour
  • Moisturizing – face, skin, nails – 10 minutes
  • Journaling/affirmations/gratitude journal – 15 minutes (at least)
  • Eating healthy meals (with preparation) – I don’t know how long, but way longer than grabbing fast food. For three meals, it has to be at least 2 hours each day, including the time to eat and clean up.
  • Getting enough sleep  – 8 hours

Some of the things on the list above are aspirational.

I can’t accurately add up the time for those activities because it is so variable, but it is a large chunk of the 24 hours. And, again, that is as a retired person who only takes 10 minutes to get ready in the morning! Most people take longer. I wear no make-up. I don’t do anything special with my hair. I spend next to no time picking out clothing. All of those things could be part of a person’s self-care regime, requiring more time and attention.

My exercise routine is minimalist – better than nothing, but not the amount of time a truly fit person devotes to working out. For someone like, let’s say Jennifer Aniston, it is a full-time job to look like she does. Not that I would choose her as a role model. I don’t make a living on my looks and never did. Unfortunately, though, we live in a world where we set up unreasonable expectations of what we should look like, but the vast majority of us can’t take that much time to nurture ourselves.

Many people face other types of health challenges that require more daily attention. I’m very lucky. Other than this annoying thing with my voice, and the usual minor aches and pains that come with age, I am healthy. In the past I have had occasion to go for physical therapy (for a frozen shoulder or a tweaked back) and there were stretching exercises prescribed. Those kinds of regimens can be hard to stay faithful to.

So, what is my point? First, that doctors and therapists of all sorts need to be realistic and work with folks to figure out a program that can be followed. Second, we need to be honest with ourselves – what are we willing to do? What do we have time to do? Do we believe in the regime that is being prescribed? Lastly, let’s not expect perfection. There’s nothing good about beating ourselves up over falling short of our goals – that can lead us to spiraling into negativity and being more self-destructive.

I want to be able to sing to my grandchildren – that is my main motivation for working on my voice. That and I don’t want to annoy people with my constant rasp. My throat doesn’t hurt, my voice just sounds bad. In a more general way, I want to be proactive about my chronic congestion to help lessen the number of sinus/ear infections I get and preserve my hearing. I will try to stick to the program, but I will also try to follow my own advice. I beat myself up enough about all kinds of things. I don’t need to add this to the list.

Other aspects of self-care: relaxing, reading a book, drinking coffee and spending time with my kitties-now kitty 😦

Alive in the World

Yesterday we drove through the Berkshires on the way home from visiting our daughter. The oranges, reds and yellows of autumn were on full display. I selected Jackson Browne’s Solo Acoustic Album 2 as the soundtrack for our ride. The song “Alive in the World” came on. I looked at the magnificent scenery as the song played and I decided I needed to listen to it again. “Do you mind if I replay that?” I asked Gary, who was behind the wheel. “Go for it.”

Here are the lyrics:

I want to live in the world, not inside my head
I want to live in the world, I want to stand and be counted
With the hopeful and the willing
With the open and the strong
With the voices in the darkness
Fashioning daylight out of song
And the millions of lovers
Alive in the world

I want to live in the world, not behind some wall
I want to live in the world, where I will hear if another voice should call
To the prisoner inside me
To the captive of my doubt
Who among his fantasies harbors the dream of breaking out
And taking his chances
Alive in the world

To open my eyes and wake up alive in the world
To open my eyes and fully arrive in the world

With its beauty and its cruelty
With its heartbreak and its joy
With it constantly giving birth to life and to forces that destroy
And the infinite power of change
Alive in the world

To open my eyes and wake up alive in the world
To open my eyes and fully arrive in the world

To open my eyes and wake up alive in the world
To open my eyes and fully arrive in the world

If you would like to listen to it, here is a link: https://www.youtube.com/watch?v=8T4JwA4OIio

The song resonates with me – I have always liked it. I could have written the first two lines, or perhaps they were written for me. But the whole song is right on point. “With its beauty and its cruelty, with its heartbreak and its joy, with it constantly giving birth to life and to forces that destroy, and the infinite power of change, alive in the world.” What a perfect description of this thing called life.

Having spent two days holding our four-month old granddaughter, a bundle of light and joy, the lyric brought tears to my eyes – and it does as I write this. I need to believe in the infinite power of change alive in the world.

I wake up this Monday morning not feeling particularly hopeful, but I am replaying the song and holding on to that thought as we face the absurdity of Kanye, Elon and Trump (the list of threats could go on and on). I renew my request from last week, please vote, please make your voice heard. Let’s elevate Jackson Browne’s message, not theirs.

I Can Solve NOTHING

Note: I wrote the following in a fit of frustration, anxiety and sadness two weeks ago. Some things have changed since then (some things haven’t), but I thought it was still worth sharing as a snapshot of my state of mind that others might relate to.

I can solve NOTHING!

I can’t get the handle on the fireplace damper fixed or replaced.

To be more precise, the company hasn’t called back to offer any solutions.

I can’t get a spare tire or ‘donut’ in case of a flat tire.

To be more precise, if I get a spare it will take up the whole trunk.

Not a good option.

Donuts are difficult to find. I can get a used one shipped from Arizona or California for a lot of money.

The Honda dealership offers no options or solutions.

I went to AutoZone and a helpful man showed me the tire sealant he recommends. I bought it and threw it in my trunk.

I will keep my AAA membership – I’ve been getting good use of it these past two months.

I will pray that if I get a flat, I’m in cell phone range.

I can’t get a memorial stone for Aunt Clair.

She wanted a footstone placed at her mother’s grave, though she herself chose to be cremated.

It comforted her to think of it.

I ordered one and paid for it immediately after she died six months ago.

After many emails and layers of approval, from the burial society and the cemetery,

After mock-ups back and forth,

The dates are wrong on the latest one.

Must it be so difficult?

Is it time for Plan B? What is Plan B?

I have an idea,

But it doesn’t have Aunt Clair’s seal of approval.

I may have to live with that.

I’ll give it one more shot with the monument company, then we move on.

I can’t get my mother’s insulin regimen straight.

Her doctor rarely responds to my calls or emails.

I placed another call this morning.

Fortunately, Mom is getting her insulin

Though her glucose is not well controlled.

Ironic given that I am married to an endocrinologist.

It is not his fault, nor can he manage this in a day-to-day way

For many reasons.

Sigh.

I can’t convince my granddaughter to make her entrance into the world.

She is 9 days late and counting.

I am grateful that all appears to be well with mom and baby,

But we are on pins and needles.

We are at loose ends.

Waiting

I know patience is a virtue

Sadly, I was not blessed with it.

Is this a test?

I can’t resolve my laryngitis.

A month into this

A course of steroids

Decongestants

Nasal spray

Allergy medication

Reflux medication

Cough medicine

After ten days, I can at least make sound, I can talk on the phone

So that is an improvement,

But, is this hoarseness permanent?

Of course, it could be worse.

It could be my grandchild gunned down in school.

It could be my friend murdered in a supermarket.

That is small comfort.

So much struggle

Can we hope for more than being grateful that we weren’t in the site of a gunman?

Update: There is some good news. There is hope for movement on gun safety legislation. It isn’t enough, it isn’t what I would want, but I am a pragmatist about public policy. Something is better than nothing and hopefully it can be built upon.

Our granddaughter did make her entrance into the world – the day after I wrote this she arrived. We are thankful and in love with the peanut.

I haven’t had to call AAA in the last two weeks – but I don’t want to jinx myself as I will be driving quite a bit over the next few weeks!

Aunt Clair’s monument is still unresolved, we are still struggling with Mom’s diabetes though she seems to be stable, and I am still hoarse. Of lesser importance, the damper on our fireplace is still not repaired – and the guy who said he would pave our driveway a month ago hasn’t been in touch. I figured I’d throw that in since that is another one of those things that feels out of my control.

Despite the remaining frustrations, I am in a much better frame of mind than when I wrote my screed of exasperation and anxiety, and for that I am grateful.

Strong Ties

When you have a group of friends, especially from college, there can be an ebb and flow to the connections. I was part of a group of four friends at SUNY-Binghamton that has remained connected for 46 years, from freshman year through graduation and the decades that followed. Wow! that is a number that is hard to fathom. Stretches of time pass without seeing each other, though social media has made it easier to keep tabs on one another, but when we gather again, we pick up where we left off. Alison, Dianne, Merle and I have all led very different lives since college but the essentials remain – our view of the world, our humor, our wish to see the best in each other are at the heart.

Most recently we gathered in Atlanta for a four-day visit. Sadly, the reason for our reunion was the death of Dianne’s husband after a grueling battle with pancreatic cancer. Dianne has lived in the Atlanta area since 1982, the rest of us remained in New York. Though our trip was prompted by her tragic loss, our time together included as many laughs as tears. There’s a Joni Mitchell lyric, “laughter and crying, you know it’s the same release” seems particularly apt. Our visit surely did not heal Dianne, a loss of that magnitude is too hard to process if it ever can be, though she is strong and resilient. Hopefully we provided comfort that she can draw on as she figures out her path forward.

The four of us bonded during freshmen orientation at SUNY-Binghamton. Alison and Dianne chose to room together, they were high school friends from Island Park, a working-class suburb on Long Island. Merle and I came from Canarsie (Brooklyn) and though we attended the same high school, we didn’t know each other well. Luckily, the four of us were assigned to the same dorm, Cayuga Hall. Many nights of drinking, dancing, studying, and talking – mostly talking – laughing and crying carried us through those four years.

Sometimes in friendships like ours there can be crosscurrents of tension where one person falls out with another or the dynamic shifts. That didn’t happen so much for us, at least not that I remember. Choices we made, classes, internships and jobs, may have separated us but the bond remained. We saw each other through break-ups, disappointments and achievements in those four years. It is kind of extraordinary that it was enough to sustain us for more than 40 years after we left college.

Some friendships are born of convenience, from work or your neighborhood, and when no longer convenient, they dissolve. Others stand the test of time. What is it that creates a stronger connection?

Scenes from Atlanta:

‘Learn-how-to-meditate-January’

I think the whole country, the entire U.S. of A., should take up meditation. I had this epiphany the other day after I finished the 20th of a 30-day class – each session is only 10 minutes –  offered through an app called Calm. I realize this is an impossibility on so many levels, but I’d like to make the case.

Much of the divisions in our country are caused by people feeling aggrieved. Some folks believe they are unseen or unheard by our government or by the rich and powerful. Some are bitter because of sour relationships. Others are angry because they think many in this country have been swallowed by a cult causing us to drift (speedily swim?) toward authoritarianism. Whatever the source of the grievance, I think the practice of meditation can help because it requires that you become more neutral, you need to adopt a stance of equanimity to sit quietly for ten minutes. I don’t mean to simplify something that is quite complex. Both the problems that have led so many to feel alienated/angry and the practice of meditation are complicated. But, they are simple, too.

Sitting quietly and breathing slowly and deeply for ten minutes each day is both the easiest thing in the world and the hardest. Quieting your mind, allowing emotions to flow through you but not possess you, takes practice. I am a novice, but I see the benefit of having done it for about a month (and, full disclosure, I missed some days during the month). Some people did a ‘dry January,’ I did a ‘how to meditate January.’

I was motivated to try this because during these last couple of years during the pandemic, I have found myself easily riled. I go from zero to sixty emotionally in seconds. I felt agitated much of the time. I read a headline and feel my stomach churn. I can’t say that my meditation practice has changed all of that, but there is noticeable improvement. I still get anxious at the prospect of taking Mom to the doctor, and I still feel my blood pressure start to rise when I read about Donald Trump’s latest rally, but I feel more in control. If it can do this for me, I can imagine what it would do for all the people out there who are living on the edge.

The practice allows you to acknowledge feelings that you might prefer to push down. Generally, I am pretty self-aware. I think for others who are not so blessed to be in touch with their emotions, it might be uncomfortable at first, but it would be a step in the right direction. When you don’t acknowledge what you are feeling it comes out in unexpected and unpleasant ways.

Another positive is that there are no religious aspects to meditation, unless one wanted there to be. I think it is harmonious with all faith traditions.

We are fixated with solving societal problems from the outside in – we enact new laws, fund programs, do research, require others to take action, and talk issues to death. Many of those steps, other than talking things to death, are admirable, and necessary. But, maybe, we need another approach as well. One that starts from the inside of each individual. Maybe if more people took 10 minutes a day to sit quietly and breathe deeply, there would be less hostility and better mental health. Just an idea.

I plan to extend my practice beyond ‘learn-how-to-meditate’ January.

Words of Comfort

Once again, the Covid pandemic is on my mind. Aside from wearying of the limitations it has placed on my life, it feels like the virus is closing in on me. It feels unavoidable. It has hit close to home as family members and friends have been diagnosed in recent weeks. While omicron seems to be less deadly than prior variants and results in less serious illness, it is still no joke.  And, until we are over the peak and on the other side, we don’t really know its impact.

People continue to make different choices in how they cope with the pandemic. Some reasonable folks have concluded that, while wearing masks in public spaces, they are resuming activities and living their lives. My husband is not comfortable with that approach, perhaps as a physician who is in the office seeing patients every day, he thinks the risk is too high until we clearly pass the peak of this surge. He goes to work masked and goggled, washing and sterilizing his hands relentlessly, but then declines most social activities. He would like me to make the same choice. For the most part I have, refraining from most things except I continue to play tennis once every other week. Since I am not working and we are now in the depth of winter, my life is quite limited. It leaves too much time to think, too much time to worry.

In the midst of my angst, I read some helpful words in the form of a poem that came across my Facebook feed:

I am no longer waiting for the other shoe to drop; it already did, and I survived.

I am no longer waiting for the time to be right; the time is always now.

I am no longer waiting to do something great; being awake to carry my grain of sand is enough.

I am no longer waiting to be recognized; I know that I dance in a holy circle.

Author: Mary Anne Perrone

The above lines are part of a longer piece, but these were words I needed to read right now. I’m not so sure about that last phrase – I don’t dance in a holy circle (I’m not sure I even understand what she means by that), but the idea that I don’t need recognition to find value in what I create is a thought I need to be reminded of. The belief that I am enough is something I continue to work on.

The first lines of this piece speak to the major challenge posed by the pandemic – the fear that the other shoe will drop. What am I worried about? The health of the ones I love. I want to know that family members who have Covid or another a health scare are okay, that they will recover quickly and suffer no ill effect. Unfortunately, I can’t know that.

Worry can always be around the corner. If I allow it, it can rule my life. I find comfort in those lines above – the shoe has dropped – at times. It is true that the worst has not happened – I am still here, as are Gary and my children, thankfully – but bad things have occurred, and I have survived. I have managed.

The other day I had a long conversation with a friend who is battling colon cancer. Her husband took the diagnosis hard, understandably. It is scary, though her prognosis is good. Her husband was depressed and after a time she confronted him, saying that she needed him to stop being so down, she needed a more positive attitude. He confessed that he was terrified of losing her. She reminded him that she is here now. When something scary and unknown hangs over you it is hard to be in the present.

Though I am not faced with the same situation as my friend, I related to the challenge they faced. The meditation app I started using a few weeks ago offered helpful insight into the scenario where you might imagine the worst. During one of the exercises, the guide pointed out that thoughts are not reality – thinking something doesn’t make it so. Worrying about future health complications has little to do with the reality of the here and now. It is easy to go down the rabbit hole of ‘what if,’ but it leads nowhere and accomplishes nothing. We can’t put our head in the sand, we need to plan when we have real information about what the future holds, but we can’t live in anticipation of the worst. It is a choice we can make. I can control my thoughts. What a revolutionary idea! It doesn’t come easy to me, but it is empowering to realize that I can redirect my mental energy.

I don’t think I used to have to work so hard to quell the worry. I didn’t worry so much before. Why am I now?

Maybe being inundated with bad news – people losing their homes to fire, people dying of Covid, a friend losing her husband to pancreatic cancer – has made it harder to cope. Bad things were always happening and will always happen. I think social media heightens the sense of disaster all around us. Did they always report when a retired third string quarterback for an obscure NFL team died? My Twitter and Facebook feed is filled with those stories. When someone as famous as Betty White died in the past, of course it made the news. But now it is hard to know what to do with all this information, especially all the losses. How can we process these deaths (whether related to Covid or not)? It is hard not to be overwhelmed.

Some periods of time seem more perilous than others. This is one of those times. I want to put the people I love in a bubble. But I can’t, nor would they want to live there. I need instead to focus on the joys, the beauty and the love today.

Serenity now! View from a walk at Five Rivers – another coping-with-the-pandemic strategy