Surveillance Anyone?

As happens with some frequency, I was listening to a podcast and it got me thinking. It was Stay Tuned with Preet. Preet Bharara interviewed Nita Farahany, someone I had never heard of before but learned that she explores the intersection of law, neuroscience, and technology. She is a law professor at Duke University and has a PhD in philosophy. She has quite an impressive resumé (I looked it up).

They discussed the implications of emerging technologies in brain monitoring, as part of the larger issue of society’s increasing capacity for surveillance. During my first listening (yes, I listened more than once and you’ll understand why in a moment), I was outraged. Why? Because she said the following, “We have cameras in our kids’ bedrooms. Our oldest, who is now seven, she wouldn’t cry, she would look at the camera and wave….”  On first hearing that, I thought she was saying that they had still had a camera in their seven-year old’s bedroom. Most parents these days have baby monitors that include video, but I assumed once the child was able to climb out of bed and come to the parent’s bedroom, the monitoring device would be removed.

Would you find that outrageous, having a camera in a seven-year old’s room? I think children deserve to have some privacy. I don’t think they should be monitored 24/7 unless there are unusual circumstances. I believe we removed the baby monitor, it was limited to audio, from our child’s bedroom once they were out of the crib. Why wouldn’t the same notion apply to monitors that include video?

It is possible that I misunderstood what she said. She was making the point that children growing up today are accustomed to being watched. In the comment above she explained that by the time her daughter was one, she would wave at the camera to get her parents to come get her, she didn’t cry. For her it was normal to be watched in that way and that could have implications about how they felt about it as they got older.

Thinking that she was still surveilling her daughter with a camera, though, my immediate reaction was, “And you are an ethicist?!?” I then thought that I didn’t really want to hear the rest of what she had to say, and I turned it off.

Upon further reflection, I wondered if I heard right, perhaps I misunderstood. And then, as I thought more deeply about it, I wondered if, given the emphasis on security these days, if cameras in children’s bedrooms and throughout the house are common and are simply a given. If that is the case, what does that mean for privacy? Who is watching?

Recently when our daughter was pregnant and putting together her baby registry, she explained something to me that her brother, who’s child is now four, explained to her. When you buy a video monitor you can choose one that is wifi enabled or not. Our son and daughter-in-law selected one that was not, in other words it worked over a certain distance in a house but didn’t utilize the internet. Our daughter and son-in-law made the same choice, believing that it reduced the risk of being hacked or monitored by uninvited individuals. Our children face parenting decisions that we didn’t dream of. I don’t envy them.

Realizing that I may have misunderstood Dr. Farahany, I decided to listen to the entire podcast, and to replay the part that got me so angry. I was calmer and realized I may have leapt to a conclusion. I also realized that perhaps it wasn’t so crazy, though I stand by my belief that children deserve privacy, too.

I’m glad I listened. First, it was not clear that cameras were still in use in her older child’s room. I would love to ask her to clarify and hear her thoughts on the idea. Second, they discussed a lot of important subjects that we need to consider as science and technology evolve.

One area they discussed was use of brain monitoring on long-haul truckers, and this technology may not be limited to that job. We might agree that monitoring truck drivers’ level of alertness, which can be achieved using several different types of surveillance technologies, is a good thing since drowsy driving is the most frequent cause of accidents on our roadways. The issue gets stickier when you think about what other data might be collected along the way, who might have access to the data and how else it might be used. If we can be sure of the narrow use of the information, to inform the driver (and the employer?) that they are sleepy, then the intrusion on privacy is warranted. One can imagine a whole host of possible misuses of the information, though, especially if the monitoring isn’t limited to tracking wakefulness. And even in that limited application, what does it mean for employer/employee relations? Does the trucker get disciplined? Hopefully, these issues have been worked out before the technology was implemented. Sometimes that planning doesn’t happen, and the horse is out of the barn before the implications have been considered.

Privacy is a sensitive subject, especially when balanced against safety. In many areas of our lives, including in our own homes, we make calculations about what is more important to us. We are often willing to sacrifice privacy for security, but we need to be mindful of unintended consequences. And, like many things, we won’t all agree on the proper balance. It is an important conversation to have, especially as parents of young children.

Privacy

Privacy settings on Facebook

A snippet of conversation overheard:

“I can’t think of anything worse than finding a picture posted of me on the Internet without my permission,” he said.

“I don’t actually remember if he asked before he posted,” she replied. She didn’t sound perturbed by it. “He may have asked, I don’t remember…..I mean, I don’t like when someone does that either but….whatever.” She shrugged.

He shook his head disapprovingly.

The exchange got me ruminating about my own actions. I surmised that she was surprised to find a photo or video posted of herself online, and to him the idea of that happening, of personal stuff being out in the world that he didn’t put there, is an anathema. He wants his privacy. He doesn’t want anonymous people knowing or seeing his business.

Clearly, I don’t share that feeling. This blog offers plenty of evidence of that. I know better than to post a picture of a person without getting the okay beforehand, but I been known to make mistakes. Overhearing that conversation, I could imagine the young man saying to me, “You’re nuts for putting all that stuff out there!”

I know the exchange had nothing to do with me, but it hit a sore spot. I feel some measure of self-consciousness about what I do.

I don’t share everything. I draw boundaries.  I make choices about memories or experiences I want to write about. I also want to be careful that I am sharing my story, not someone else’s. Most of the time when I write something that involves another person in a significant way, especially if it can be seen negatively, I show it to them first. I have edited pieces in response and sometimes I censor myself. I have invited folks to share their perspective on the blog, too.

I want to share my experiences. It is a way of feeling less alone. When a reader responds that they identify with what I have shared, it is validating. And, even more importantly, writing about painful feelings, takes away of some of their power. Things that live in my mind as embarrassing or irritating are made less so when I put the feeling in words and set them free.

Why do I feel the need to justify that I do this? There must be a part of me that questions it, wonders if it reflects weakness or a failure to properly value my own privacy.

This question of privacy, though, goes well beyond social media etiquette. For instance, people make different choices in regard to sharing information about their health (I’m not referring to what is shared on Facebook, I mean even in everyday conversation). Some are an open book and might share more than you ever wanted to know. At the other extreme, some don’t want to be asked how they are feeling. As we get older, health becomes more and more of a focus. It can be hard to avoid discussing it. I think I fall somewhere in the middle. I want to be open with my husband and my children. If it is something that can be inherited, like high blood pressure or diabetes, then I think I owe it to them to share the information. If it is something that is affecting the quality of my life or my mood, it seems only fair to clue them in. I’m not big on putting on a happy face – at least not for those closest to me. I also tend to think secrets have a way of blowing up.

There shouldn’t be shame attached to illness either– it shouldn’t be seen as a sign of weakness or a personal failing. We’ve lived too long with people hiding mental illness or addictions, in particular. Some illnesses carry judgment – if you are a smoker and get lung cancer, or if you are obese and are diagnosed with Type II diabetes, you can feel like you deserve it and/or that others deem it as a just punishment. None of that is helpful. If it were simple, no one would smoke or be obese.

By the same token, I understand not wanting to feel like your condition is tattooed on your forehead. We don’t want to be defined by an illness. It is a matter of personal choice if you want these things widely known. There is no right way to be about this. We need to respect each other’s wishes. What makes it complicated is if we assume that others share our standards.

For me, the health issue is particularly vexing. My husband is a doctor. I have been with him from the beginning of his training and while I am not confused about the fact that I did not earn a medical degree, I think it is fair to say I have more knowledge than your average citizen. If someone speaks to Gary as a patient, he doesn’t share it with me. If it involves our children, he will. Our kids understand that (if they didn’t, now they do). I find, for whatever reason, some people do confide in me about these things; others don’t. It can be surprising who falls into each category.

I will admit to having pretty strong problem-solving skills. When my dad was sick, it made me feel better if I came up with something that helped him to be more comfortable. When Dad was getting chemo, he and Mom were staying in an extended-stay hotel. Dad was spending a lot of time in bed, aside from being tired, the chairs in the sitting area in their suite weren’t that comfortable. I found a place that rented furniture and we had a reclining chair delivered for the duration of his stay. It was a win-win. I still feel good about that. If Mom hadn’t shared her concern about Dad being in bed so much, I couldn’t have helped find a solution.

Combine the familiarity with medical issues with a propensity to want to fix things, or help people, and I can probably overstep. Or maybe I don’t. Geez, my brain is a confusing place to live.

I started this essay by recounting an overheard conversation that led me to question myself. Now, having written about it, processed my thoughts, and putting it on the blog, it isn’t eating at me anymore. I won’t go so far as to say I am at peace, but I am not ruminating. I’ll call that a victory.